Friday, February 09, 2007

Good heavens, there are people in my comments section!

Hi, y'all, and thanks for coming to see me. Here, have some huckleberry jellybeans and Tab.

R, I thank you for your comments, and I continue to be baffled by people who appreciate my comments, but I am also highly easily amused by these things as well.

As far as the headache diary thing goes, it's annoying. I've been told that a lot of people get better with time, but it's really been going the other way for me. They started out just regular headaches, and somehow ended up with what is generously called chronic daily headache. Basically, I've had the same headache, literally, since 1990. No, really. It does not go away. Ever. That's tedious, and no one needs to hear about it. I've been through all the neurologists and all the meds, and it's boring, just plain damned boring. It gets progressively worse, and I get progressively used to it, so in effect it's pretty much stable. A couple years later, I got hit by some driver who apparently viewed crosswalks as mere guidelines, and since then it's been migraines. About the time I gave up on trying to find a solution to that, I managed to concuss myself and now I get what are apparently clusters, which have also been getting worse. So by now the ER knows me pretty well. My new neurologist seems to hate me for not being something she knows how to fix, and didn't like my headache diary, which consisted quite graphically of Things I'd Rather Be Doing Than Have This Headache. In the meantime, there was a psychologist who felt that the migraines were the result of my PTSD, and spent months trying to convince me that I have repressed raisin-related memories. (Raisins are a trigger. As are peanuts, popcorn, and most of my favorite scents.) There was also the neurologist who felt that my refusal to contemplate acupuncture until I'm presented with actual studies showing it works better than placebo means the headaches can't be that bad, and the housemate who assumes I'm exaggerating to annoy her, because, obviously, if I really did have a migraine, I'd be hiding in my closet. (Let's put it this way. I have chronic daily migraines. If I spent all my time dealing with them, I'd never do *anything*. As it is, I'm simply unemployed.)

At this point, the solution is to avoid the obvious triggers, carry around with me my phone number and other information I forget when I have a bad one, neither expect nor promise much of myself, go to the ER for the clusters after a week, get CT scans and glaucoma tests once a year to rule out stupid shit, and periodically succumb to fits of optimism that some neurologist somewhere will have something that accidentally ends up working, since none of the rational things have. Sooner or later, someone will hit on something, and it will turn out to be completely random.

Okay, that was incredibly boring and lame, and I'll try never to do that again.

To make it all up to you, let me give you this cool site, which has piles of free paper toys to print out and build. I just did the fishstand, I've been doing all of their little shops and houses at seventy five percent scale which is pretty much exactly the right size for my Playmobil people. And do check out Herr Doktor's link to Flying Pig. The Flying Spaghetti Monster is adorable, I built that today. The Flying Pig models aren't free, the Paper Museum ones are, they're all cool.

I promise to work on a blogroll, though. That seems like something worth doing.

8 comments:

Anonymous said...

I'm terribly sorry to hear of your migraine troubles. Good luck with finding a solution and/or coping with them.

I'd also like to second the recommendation that, for your own blog, you could simply copy/paste your comments from other blogs along with perhaps a little explanatory message or block quote to indicate exactly to what your comment is responding.

Over time, this could evolve into a pretty darned good blog in its own right.

Seriously, I always enjoy reading your comments and will welcome your blog into my own bookmarked folder of daily reads if you develop this into a regular thing.

Anyway, good luck with both your health and your writing. May the former be as pleasant as the latter.

BTW- I generally don't register for comments, so I'll appear here as Anonymous. I'm RobW.

Anonymous said...

Next time I get a migraine, I'll try not to whinge so much about it. Still, it is not much of a consolation for you to know that you are the Inspirational Readers' Digest story in someone else's life, so I'll shut up now.

flawedplan said...

I found you, yip. Your voice is beautiful and you help people effortlessly. I like what you're doing with this space. There is a sense of possibility here...or not! That's the way to do it.

I also suffered from severe migraines for several years and tried all the new and worthless technologies, it came down to Codeine and lights out every time. They can stop happening, spontaneous-like, and I hope that happens for you.

D. Sidhe said...

You're kidding, right? Everybody gets to bitch about their migraines. They suck. Whine away. Really, whimpering is one of the few things you can do without making them worse. Anyway, if more of us did, maybe the doctors would grasp the actual issues involved and stop asking have we tried aspirin yet and do a little research on how to help.

Really, I suspect it would stun most people to realize how much doesn't get done day to day because people have headaches and migraines.

flawedplan, that definitely also sucks. Codeine is especially a huge cause of rebounds. It sounds like they've stopped for you, I sure hope so. I know people whose migraines quit after they had kids, and someone who stopped having them after ending up in the hospital for completely unrelated surgery, and people who stopped having them as they got older or hit menopause or whatever. I really don't think anyone actually understands what causes them, so I suppose it makes sense that no one understands what makes them stop, either.

I'll have to look into the options over here, though. I find having to register to comment annoying. It seems like my commenting setup is weird, so there's undoubtedly something I need to customize.

Anonymous said...

I love your comments on various blogs too.

I have also had approximately the same headache for the last umpteen years, but at least it's low-level, and nowhere near a migraine (which I also get occasionally). I finally decided the chronic headache I have is a result of TMJ issues. I didn't think of a PTSD connection, which I also have.

I definitely sympathize on "the things that don't get done because I'm completely incapacitated by pain" situation.

Scott said...

Slightly off-topic (because I'm trying not to think about my own clusters)...

D., would you send me your email address? I have a question...

Scott said...

Well, shoot, I expected my email to show up in the sig. Please use the link on Wo'C. Thanks.

D. Sidhe said...

Clusters suck ass. You have my sympathies, Scott. Oddly, it's apparently pretty likely that I don't actually have clusters, just something that acts like clusters. Theoretically, according to the last neurologist, clusters in women and clusters in men are very likely completely different things with very different causes and therefore very different treatments. But they still suck.

Mychelline, not to try to outdo you or anything, I have TMJ as well, and a non-drug-responsive sinus infection that periodically requires surgical scraping. (I swear, it's nowhere near as bad as it sounds.) So it's entirely possible that you could have a bunch of contributing factors, which might help unravel it if you broaden what you're looking at as causes. PTSD in particular is probably going to aggravate TMJ, since TMJ is often a stress thing. I use Flexeril for the TMJ, that and ice. A lot of ice. (My best friend has TMJ too, and uses Soma and ice, since Flexeril makes her barf.)

and flawedplan, I neglected to say how much I love your comment. I'm considering putting it in my profile. :-)